Every now and then you read something eye opening – a perspective on a life you have never lived, and even though you may have seen it, hearing about it first hand is something else entirely. This article from the BMJ comes from a 27 year old man diagnosed with Duchenne muscular dystrophy at age 3 – and by the age of 20, he was in a residential home.
He goes on to discuss all the aspects of life we take for granted; about fear, religion, relationships, and the future. The latter part of the article goes on to describe what health professionals can do to help these patients – it’s simply not to be missed. Whenever you get a moment, read it over here.